It’s been a really trying and hard 9 months. I first got sick (this time) in June 2016. When things were at their worst, I was unable to eat and lived on soup broth and half a chocolate milk shake each day. I was losing weight, spent most of my time sleeping, and a trip up the stairs would make me nearly faint each time. I would take a short outing every few days, but had to use a motorized scooter and could only stay out for a tiny amount of time.
I really thought that I would go to Mayo Clinic and get a diagnosis and then be able to be treated, cured, and move on. That was not how it happened. I have now taken 4 trips to Mayo Clinic in just 5 months and while I have received a diagnosis (several), there is no cure and treatment options are minimal at best.